Media
The TANGO2 Research Foundation is rewriting the story of rare disease.
From the Founders: Why This Matters
When we first founded the TANGO2 Research Foundation in 2018, we were driven by a desperate, personal hope to save our son, Ryan. At the time, we were told the condition was a mystery, and we often felt like we were searching in the dark.
These media highlights represent more than just public recognition; they are the clinical and scientific validation of every parent’s intuition. Seeing our story shared by Endpoints News and discussed by Katie Couric confirms that the ‘patient-led’ model isn’t just a dream-it is the gold standard for modern medicine.
When Dr. Miyake shared at SXSW that no child in the B-vitamin study has died since the implementation of our protocol, it was the ultimate proof that our collective ‘heart work’ is changing the trajectory of this disease. We share these milestones to give every TANGO2 family the same hope we found: that by working together, we can rewrite the future for our children.
- Mike & Kasha Morris
Global Reach
The Global Standard for Patient-Led Research
Featured in Endpoints News: An in-depth look at how the TANGO2 Research Foundation serves as a "gold standard" for advocacy. The article highlights our unique model of placing families in the driver’s seat to accelerate scientific breakthroughs.
A Conversation with Katie Couric at SXSW 2025
"In Rare Disease Advocacy, Women Are in the Driver’s Seat": Watch the recording of this pivotal panel where Dr. Christina Miyake shares the "miracle" of the TANGO2 B-vitamin protocol. Moderated by Katie Couric, this session officially acknowledges the vital role of the Morris family in discovering a treatment that has ensured no child in the study has died since its implementation.
Local Impact
While our mission now spans over thirty countries, the heart of our work began right here at home in Connecticut with the neighbors and local advocates who first helped us find our voice.
CT News Channel Interview with Ann Nyberg: A look back at one of our first television appearances, where we shared Ryan's "medical mystery" and our initial vision for the foundation.
NYBERG: The TANGO2 Research Foundation
Original Air Date: 2018
Program: NYBERG, hosted by Ann Nyberg
Station: WTNH News 8 (Connecticut)
Description: In this segment, founders Mike and Kasha Morris sat down with Ann Nyberg to discuss their son Ryan’s diagnostic journey and the official launch of the TANGO2 Research Foundation. The interview highlighted the foundation's initial mission to fund research and provide a "lifeline" for families newly diagnosed with this ultra-rare disease.
"Belltown Family Fights Rare Disease" (July 27, 2018)
This foundational article documents the early days of the foundation shortly after Ryan’s diagnosis in 2017. It details the 15-year "search in the dark" and Mike's description of the "sense of urgency" behind the foundation's work. It also highlights the early goal of raising $250,000 to hire the first research team.
“Hope is Growing, New Treatment Prevails” (July 28, 2023)
This profile piece provides an in-depth update on the Morris family and the Foundation’s growing global impact. It highlights Ryan’s milestone as a 2020 graduate of East Hampton High School and explores the staggering prevalence data suggesting that over 6,000 individuals worldwide may be living with TANGO2 Deficiency Disorder unknowingly. The article details the ongoing mission to shorten the "diagnostic odyssey" for families across thirty countries.