Speaking Engagements
A seasoned speaker for global organizations like the Chan Zuckerberg Initiative Rare As One network, PCORI, and Global Genes, Kasha shares a powerful narrative of maternal intuition meeting scientific action. Her upcoming memoir, A Reason to B-lieve, chronicles her family’s transition from a desperate search for answers to leading a global research movement, proving that when a community unites, the impossible becomes inevitable.
Whether you are looking for a keynote speaker for your next conference, a collaborator for rare disease advocacy, or you simply want to hear an inspirational story of faith and action, I would love to hear from you.
I am currently available for:
Keynote Speaking: Sharing the B-vitamin breakthrough at medical, advocacy, and community events
Media & Interviews: Discussing the TANGO2 Research Foundation’s journey from a kitchen-counter hunch to a global scientific powerhouse
Literary Inquiries: Updates regarding the release and promotion of my memoir
Please use the form below, and I will get back to you as soon as possible.
Panelist: The Future of Drug Repurposing in Rare Disease
Description: Featured at the 2023 Chan Zuckerberg Initiative (CZI) Rare As One Conference, Kasha joins David Fajgenbaum, MD, and other leaders to discuss the "ROADMAP" for drug repurposing. Representing the TANGO2 Research Foundation, she shares real-world insights on how patient communities can identify and accelerate existing treatments to save lives.
Keynote: Beyond Hope: Real-Life Miracles in Rare Diseases
Description: In this 2025 presentation at the CureGRIN Foundation conference, Kasha explores the intersection of faith, maternal intuition, and the scientific mission of TANGO2. She shares the pivotal moment when a "mom’s hunch" and a simple B-vitamin became a lifeline for her son Ryan—and eventually, a cornerstone of research for the global TANGO2 community. This talk illustrates the central theme of her upcoming memoir: how a parent's voice and actions can drive medical discovery and create real-life miracles.
Panelist: Simplifying Science for Global Families
Description: "Unlocking the Future: The Role of Natural History Studies" (Global Genes RARE Advocacy Summit, 2024) In this panel from the 2024 Summit, Kasha Morris discusses the evolution of the TANGO2 Research Foundation from a personal "medical mystery" into a global research leader. She shares how simple parent-led tools—like a "blue binder" of medical records and a symptom spreadsheet—became the scientific foundation for a global natural history study and the discovery of a life-saving B-vitamin protocol. This session highlights the power of shifting families from passive observers to active research partners to rewrite the future of a rare disease.
Co-Founders' Address: A 15-Year Search for Answers
Featuring Mike Morris (0:00) and Kasha Morris (14:26)
Description: Speaking at the 2022 TANGO2 Family Conference, Kasha and Mike Morris reflect on the foundation’s rapid progress and the personal journey that started it all. Starting at the 14:26 mark, Kasha shares the powerful story of Ryan’s birth on 9/11 and the 15-year search for answers that followed. This presentation highlights how the TANGO2 Research Foundation has evolved into a global connector, bridging the gap between patient families and world-class researchers to rewrite the story of a rare disease.